As I've already apologized before, I'm sorry for the posting delays. With facebook these days, I keep remembering to update that site and not this one! I hope to get better at this...maybe a belated New Year's resolution? :)
So much has gone on in the Beyer household...all GOOD things! Ava is now puke-free for well over a month so hooray for that! She's started sitting nearly on her own, just occasionally needs a reminder not to fall over. She's also started baby foods! So far, chicken + gravy is her least favorite meal. Surprisingly, most of the "meats" she'll take only when a fruit is mixed with it. Makes my stomach churn but whatever works, Ava! At our most recent CF appt, the docs say that we should now add table salt and fully loaded butter to any baby food she takes. What a lucky baby, eh?! Sure makes those sweet potatoes go down a little easier (which she likes for the moment)!
Still no teeth...just loads of drool and chewing on everything and anything that comes near her mouth! Poor little girl.
About mid-January, miss Ava acquired some new accessories to her ears and she looks SO cute with her new sparkly earrings! Of course, she handled them like a champ and has yet to notice that they're still in her ears. Such a dolly!
Up & coming things: will most likely get her G.tube removed around Easter! Her first lung function test is the middle of March (to get an "inside look" at how her lungs are doing). Mark your calendars!!! MAY 2ND, 2012!!! We will be throwing a fantastic shindig at The Doghouse Bar in Maplewood...a benefit/event to help raise $ for our CF Great Strides walk on May 20th & for Ava's ongoing medical needs. More info with details to come...keep posted to the avasarmy.org website for updated information as the dates draw near!
Thanks for reading and fingers crossed that it won't be another month before my next post! :)
~Kate
Can't wait to get all our family and friends together and walk for our Ava and all the other CF folks!! We are getting closer everyday to making it easier for everyone dealing with this disease.
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